Advocate For Fragile X Families

On National Fragile X Foundation Advocacy Day, held every March, members of the Fragile X community descend on Capitol Hill to relate their stories about Fragile X-associated Disorders, their families, and policies that support Fragile X families, such as health insurance, research at the NIH and DOD, research and public health programs at CDC, ABLE accounts for savings, facilitating the use of potential new drugs for treatments and a cure, and other items.

Overall, the goal of the NFXF is to be a voice of solutions, working across party lines, to improve the lives and opportunities of people living with Fragile X.

NFXF Advocacy Day 2018

Copyright 2013 Heartland Fragile X Alliance.  No Animals were harmed in the making.

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