Meet Our Board
"Education is the most powerful weapon which you can use to change the world". Nelson Mandela
Vice-President: Brenda Slama
Brenda is the Sales Manager/Engineer with Positech Corporation. Brenda and her husband, Brian, have two children, Josee and Gus. Their nine year old son, Gus, was diagnosed with Fragile X Syndrome when he was 21 months. Their daughter, Josee, is 12 and Gus' biggest advocate and the best big sister ever!
President: Nancy Carlson
Nancy is a retired marketing consultant. She has been married to her husband, Ken, for over 25 years. They received their son's Fragile X diagnosis when he was 3 1/2 years old. Derek, their only child, is now a young adult attending a day habilitation program and volunteering in their community. In the past six years, Heartland Fragile X Alliance has grown from a handful of parents to a core group of parents, families and friends that have helped raise funds and awareness of Fragile X Syndrome in their communities. Nancy is looking to continuing to bring hope to more families through outreach.